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The Question
Read more: The QuestionI took Baby to get his hair cut. I think he has grown taller since you left. The hairdresser couldn’t believe he was only thirteen years old. Since we were there, I checked to see if they could squeeze me in. It has been at least two years since I had a professional haircut. They…
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And There She Is
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Read more: And There She IsOne month ago today, sweet boy, we took you to the Emergency Department. They thought you were stable. They thought you would go to a general medicine floor. But that was when the first domino was only teetering and had not yet fallen. For the last month I have cried out to God day and…
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Yet to Be
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Read more: Yet to BeWaiting for the corner just a glimpse so I can see where I might turn. Where the tears will slow and my heart will beat without the pain of breakage. Unaccustomed to this stasis the corner seems but a dream So I lean I lean into the grief I lean away I sway in the…
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Cola
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Read more: ColaI am not at all steady today, sweet boy. The tears won’t stop. My eyes are swollen. The world does not spin as it should. The fog descended again and everything seems slow motion. It has been twenty-two days. Today I am simply hoping to hope. Years ago I wrote a blog about Kintsugi, the…
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Held
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Read more: HeldWe went to Tyson’s Corner today. Nathan asked if we could and he never asks for anything. I put the bravest face on I could and off we went. It was strange just going to the car. There was no backpack to stuff with catheters, aprons, pullups, wipes, g-tube kits, and pureed food. No extra…
Patience to Endure 