Tag: Faith

  • It Goes On

    It Goes On

    When I was a child, my father had a darkroom in our basement. If I close my eyes, I can still smell the bitter chemicals and see the reddish light barely illuminating the room. I did not know exactly what he was doing in there, taking paper from one chemical into another and then hanging it up. I just knew he loved it and I loved him, so sitting in the dark was perfectly fine with me.

    I don’t know why I remember the two quotes he had hanging by thumbtacks on his wall. I was only eight years old. Yet one that has been attributed to Robert Frost is at the forefront of my mind today.

    “In three words I can sum up everything I’ve learned about life: it goes on.”

    Today marks six months and one day since my sweet Wesley left. Grief makes a stranger of time. Six months, six minutes, six years. All of those are befitting of how it feels some days as I sit here in the after.

    Yet somehow, life has continued to go on. Now when I open my eyes in the morning, I am grateful my first thought is no longer, “I don’t want to be in a world he is not.”

    Acceptance.

    I am living in a world where he is not.

    Six months ago, it seemed impossible, but joy is creeping back in. I have a cheesy wall hanging that reads, “Today, I choose joy.” Up until six months ago, I believed I had that power. Child loss will render one incapable of anything other than enduring a living nightmare. It will steal a mother’s very will to live.

    Day in and day out I hung on. I clung to a barely perceivable faith. I held on with what little strength there was left of me.

    The only thing in my power was not what I could do; it was what I couldn’t do. I could not give up.

    I am resigned to the knowledge that for the rest of my life, not a day will pass that I do not feel that piercing, overwhelming sense of loss. I will miss my sweet boy as assuredly as the sun will rise. It is just how it is now.

    But the spaces in between have grown. And sprinkled in there are perfect little specks of joy, laughter, and, dare I say, life again.

    Life goes on.

    Whether we are ready...
    Whether we are willing...
    Whether we are able...

    It does go on.

    There are moments in grief, glimpses and impulses of belief that perhaps as life goes on, I might be moving forward with it. Not boldly or victoriously but quietly hopeful.

    Perhaps life’s grandest victories are not brought with triumphant banners but with the silent resignation to not give up just one more day.

  • A Cup of Cold Water

    A Cup of Cold Water

    My youngest made me cry today. After running errands, we stopped at Chic-Fil-A to get lunch. He had almost finished eating when we stopped at a red light. Next to us, there stood a man holding a sign asking for money.

    “Can you give him my water?” he asked.

    Without hesitation, I rolled down the window and asked the man if he would like an ice-cold water. The smile on his face and excitement in his voice told me it had been a while since he had one. You would have thought I gave him something much more valuable than a $1.29 bottle of water.

    The gentleman’s appreciation momentarily made me feel ashamed. I am not sure I have ever felt that level of gratitude for something as seemingly simple as a cold bottle of water. How often during the day do I grab one out of my extra refrigerator from my air-conditioned home without realizing what a luxury all of that actually is?

    Overwhelmed with emotion at my child’s gesture, I started crying, telling Nathan how proud I was by what he had done.

    “Mom, I just gave him a cold water,” Nathan said.

    “Son, you made Jesus smile,” I replied.

    Nathan didn’t stop to wonder if the man had made poor choices leading him to be standing outside on a 109-degree (with the heat index) sunny day. Nathan didn’t put himself on the judge’s bench and decide if he believed the man deserved kindness.

    He saw a need and he offered help.

    For I was hungry and you gave me something to eat,
     I was thirsty and you gave me something to drink,
    I was a stranger and you invited me in. (Matthew 25:35)
    
    While trying to shape my boy into a man, we try to teach and model for him what we believe to be important virtues and disciplines based on the faith our family holds. It is a beautiful day when I, as a parent, witness my own child’s faith take action and compel him to love like Jesus does.

    Anytime I witness someone live Matthew 25:35, my eyes well up. Today, I had the privilege of seeing it in a beautiful soul I have the honor of calling my son.

  • Mental Gymnastics

    Mental Gymnastics

    On the drive home I told mom, “I guess this is my life now.”

    As a swift summer winds down, we traveled to Atlantic Beach, North Carolina for a few days. We walked along the beach as the sun gracefully whispered “your turn” to a grateful moon. I frolicked in the ocean with my teenage son, Nathan, and for a little while we were both children again diving into the waves and laughing as they tossed us back to shore. A dinner at Amos Mosquitos left us in awe of the culinary genius at a restaurant where every dish was superb and every bite savored. We visited the Pine Knolls Aquarium, delighting at the otters, jellyfish, and sharks. At night we lay in our hotel beds watching movies and eating Dairy Queen Blizzards.

    The trip had an equal balance of excitement and relaxation. It was a beautiful way to bid adieu to summer.

    And yet Wesley’s absence was with me. It tapped me on the shoulder in the aquarium, reminding me how he signed “fish” and loved frogs. It smacked me with a wave, realizing he should have been sitting in his wheelchair at the ocean’s edge, signing “waves” and laughing as the water tickled his toes.

    The mental gymnastics required to create new memories after child loss take a soul strength I am still acquiring.

    How does one create meaningful new memories when a beloved child is no longer here? How long will every new memory have a sigh at the end?  How often will joy-filled moments be tainted by Grief’s hand?

    I suppose always.

    I am eagerly compliant in my attempt to learn mental gymnastics in order to honor my children who remain, my husband who need not lose me as well, my mother who still has years to go, and Wesley who lived abundantly.

    A friend once advised me to “live in a way that honors him.” So, I endure learning mental gymnastics and aching spiritual muscles. The need for such a skill was only ever entertained during the imagining of my worst nightmare from ICU rooms in the quiet of chaotic nights. Then, our last ICU room ended with me awakening to the very nightmare I desperately begged God to allow to pass over me.

    I do not know why He said no. I do know He is still good.

    I must forge a new skill of finding joy even while my heart is still so very obliterated. It honors my sweet boy to smile, laugh, and create new memories in spite of all I have lost. His life mattered and matters still.

    So, I twist in unnatural ways. I leap over hurdles. I swing hoping to catch the bar I just let go of.

    I bend but I do not break.

    Gratitude and grief can and must coexist. Bitter and sweet balance equally now but I hold to hope that someday the bitter will weigh less than the sweet. I do not fool myself to believe it will ever disappear.

    Grief simply will not allow it.

  • Unappointed

    Unappointed

    Dear lady in the row in front of us at church today,

    Thank you for taking your baby out of his car seat exactly when you did.

    During worship, I watched you and your husband diligently checking under the blanket covered car seat.

    At an unappointed moment, you reached in and took him out of his cocoon. Holding him for a few minutes you swayed back and forth before wrapping him against you in a sling. He was safe. He was content. He was close to your heart. It was the most ordinary, beautiful thing a mother does.

    We had just begun singing, “Even while I’m walking through the valley of death and dying,” when my tears percolated. At times, as any bereaved mother can attest, once the tears are unleashed, they become impossible to control until they are fully exhausted. Then, somehow, more are found.

    See, I lost my precious son almost five months ago. I am in the valley of death and dying, though it doesn’t feel like walking. It is more a military crawl through mud for a few inches then curling into a ball, exhausted and overwhelmed.  Progress in grief isn’t linear. It is not always forward. It is up, down, backward, and inside out. It is chaos.

    For the griever, the world is painful and unpredictable. A song, a scent, a favorite food, almost anything can be a trigger and cause an avalanche until, in unexpected places like church, I am holding on for dear life.

    But then you took your baby out and held him to you.

    His eyes grew bigger as he looked around and heard the singing. He was no longer in the dark, even if he was only sleeping. He was now awake and engaged in a welcoming world.

    The singing continued and the next line in the song became an anchor.

    “I will not fear cause you are with me. You’re always with me.”

    At some unappointed moment, God will carefully take me out of this present darkness. He will restore me.  I will re-engage with the world.

    Until then He holds me close, even here.

  • The Morning Sun

    The Morning Sun

    When my beloved son passed away four months ago, I knew I would not survive if I failed to find gratitude. My drowning soul knew it was my lifeline.

    The small things were suddenly no longer overlooked. Yet the enormity of loss left me wondering how these tiny, fleeting moments of gratitude might soothe a heart hollowed by grief.

    But I tried. Each morning, I took my coffee, sat on the couch, and waited expectantly for the sun to enter our living room.

    When a caregiver loses their loved one it disrupts life on every level. Our daily routines, our identity, and the enormity of grief are all heaped upon our already exhausted shoulders.

    Finding one good thing, one ritual, one point of gratitude may not seem like much when there is nothing but a seemingly infinite emptiness.

    It takes effort, but it matters. Four months later the sun entering the living room and spilling across my plants has accumulated enough tiny moments of joy that I can breathe, even if just a little, easier.

    What began as an attempt to find the smallest speck of joy will never fill the space my child occupied. But it has helped me to create a new routine and to discover a beauty I had taken for granted. The shadows coexist with the sunlight. They move in tandem, ensuring the plant eventually receives the nourishment it needs without burning the leaves.

    For both the sun and the darkness are temporary. Yet the plant remains.

    Some days light will pour generously through the window, and on others it is hidden behind the clouds. Whether or not it illuminates the room, the sun rises faithfully every morning. Life goes on. As cruel and as benevolent as the truth can seem, somehow, so must I.

    In time, even mourning learns the shape of morning.

  • Scripture for the Hard Times

    Scripture for the Hard Times

    There is a level of deep grief and when we are in it, Scripture and platitudes do not help. Nothing seems to help. Four months after losing my precious son I am just beginning to emerge long enough to remember and hold onto some of God’s promises.

    May they encourage you.

  • The Direct Line

    The Direct Line

    Sweet boy, last night I went to check on Grandma as she was in the garage, re-organizing. She has always loved projects but since you left, they are her lifeline. For her, Grief is temporarily hidden by keeping busy. There isn’t enough busyness in the world, though, for Grief to remain quiet.

    Every morning I sit on the couch waiting for the morning sun. I have been hunting for even the smallest enjoyment. It can feel like a drop of water for a ravenously thirsty soul. Over time and with intention, I pray, those drops just might add up to a glass of water.

    Grandma sat down on the edge of the coffee table. Her tiny body held enormous grief as her eyes welled up. She told me every morning she wakes up in a panic because she feels one of you boys missing. At eighty years old, her brain takes a few minutes to process exactly what that feeling is and who she cannot find.

    You are gone.

    In those few seconds while she tries to become oriented and discover who is missing, you are still here—until reality crashes down, and trying to subdue Grief becomes unsustainable.

    When I looked in on her in the garage last night I said, “Are you ok?” in the exact tone of silliness I used to say to you.

    Are you okay, Wesley. You ok?

    You would laugh so hard.

    Here in the after, without you, there is no place for our silliness to go. I grab little glimpses when it slips out—like a single hiccup I didn’t expect that startles me.

    When you were here, sweet boy, our home was filled with silliness in equal measure and importance to the very air. Our favorite sound was your laughter, and we did anything to hear it. You would laugh so hard and turn blue. I would have to remind you to breathe.

    Do you remember when we lived in the ICU for one month? It was the day before your open-heart surgery and Steve had you laughing so hard your oxygen dropped to below 88. The nurse came running into your room, worried you might be in distress. She was relieved to find you laughing. Steve could always go toe to toe with you in unadulterated silliness.

    You were so sick, sweet boy, but even that couldn’t stop your laugh.

    If I could have just a pinch of your resilience here in the after.

    My heart is sick in a different way than yours was.

    I wish desperately I could feel silly and laugh with you again.

    Someday, after my last tomorrow, I will.

    The house is horribly quiet.

    Seriousness weighs heavily in the air where laughter once floated.

    I dreamed last night the whole family was at the beach and the roof was on fire. The fire resolved on its own but took the entire roof. We were unprotected. Rain was imminent. We couldn’t find the paper with the phone number for the people who could help. Everyone was scrambling but it was not found.

    Like the dream, I feel unsafe in the world but there is still beauty. Unlike the dream, I don’t need a piece of paper to know Who to call for help. I know it by heart.

    When you were “actively dying” in the hospital the doctor asked if we wanted a chaplain to come. I declined, saying

    I have a direct line.

    Over our twenty-four years together, sweet boy, I called on God more times than I can count. Three times I simply asked Him:

    Please, God, give me whatever I need for the next part of the journey.

    It was the prayer of ultimate surrender from a desperate mother. Only the miracle of healing would keep you here with me, and I did not believe it was coming. There are always miracles, sweet boy, but sometimes they come by God’s definition—morning sun or Grandma’s smile or the new green of spring.

    God healed you anyway and you came home from the hospital. Though I am grateful, how I wish He had done it once more.

    I didn’t need whatever it was I thought He could give to help the unimaginable. Until now.

    And I had it all along.

    A direct line.

    I cannot escape Grief even in my sleep. She is the most relentless, unforgiving encounter of my life. Here in the after, there are times she is too loud and distorts my end of the direct line. Other times it is my own anger that makes it hard to hear.

    Yet I know I can’t disconnect from the very God who is

    my rock
    my refuge
    my strong tower
    my peace
    my portion
    my provider
    my strength
    my only way through this..


    So I call. In the questioning, I call. In the anger, I call. In the depths of suffering, I call. For the next breath, I call. In brief flickers of peace, I call. In gratitude, I call. When I don't know what to say, I call.
    When all I can do is scream, I call.

    Even if I hear nothing in response, I call.

    On the other side of my call, beyond what I can hear, I know you are laughing.

    I will laugh again, sweet boy, if for no other reason than to honor you. We are laughing on different sides of eternity. Laughing was your favorite. I can only imagine it still is.

    I will find new ways to be silly.

    But for today, seven and a half weeks in the after, I have to remind myself to breathe. Each recovered breath feels like rehabilitation—picking up my direct line is an act of rebellion.

    Each time I do I move gradually—never linearly—toward the unappointed day when laughter and silliness are not mere memories.

    Grief will not have the final say.

  • The Box That Can’t Be Unchecked

    The Box That Can’t Be Unchecked

    We took our first family trip without you, sweet boy. Baby had Spring Break so we went to New York City to visit your oldest brother, Emerson. It was so quiet in the car. I kept looking in the rearview mirror, but you weren’t there.

    My heart saw you signing “trip” and “time” and “work” (the YORK in NYC sounded to you like “work”). My mind perfectly pictured you dancing with your unique groove of thumbs up, head tilting from side to side as you swayed with the most gigantic, beautiful grin. The signature Wesley move.  You loved a good road trip but would often get impatient. For you, the joy was definitely in the destination and not the journey. Sweet Boy, the absence of all that was you filled the now empty space where your wheelchair once sat.

    We stopped at a market off I -81 for lunch. At one point I couldn’t find Baby and went into complete panic mode, briskly walking through the entire place and even checking outside. Steve tried to calm me down reminding me Nathan is 6 foot 3 and no one could just take him. My mind is so warped from the loss of you I thought to myself someone with a gun could take him. It made no sense but neither does the world.

    I found him coming out of the bathroom and threw my arms around him, crying. The world is so unsafe to me right now. That is what happens when the invisible box in our mind gets checked.

    People tend to imagine worst case scenario which never really actually happens. Until it does. The very worst thing imaginable that could ever happen in my life did, sweet boy.

    You died.

    Once that imaginary box gets checked with permanent ink, there is a seismic shift. In that shift the architecture of all you held as absolute – everything you believed unimaginable – implodes. In the rubble knowing when to be afraid and when not to is lost. Nothing feels safe and there is nowhere to hide.

    Nowhere.

    In the nightmare that transposed reality, lessons shifted from imaginary and hypothetical. What I held as sacred was taken – cruelly, harshly, and without warning – leaving me empty hearted, broken, and confused. I am unshielded. Who is to say it will not happen again?

    I hold to the one truly sacred thing I have that cannot be taken – my faith. That is mine alone to relinquish, and though at times I wrestle, I will not relent.

    These firsts are difficult. I put on a brave face so our family can still enjoy the trip. When we got to the hotel, I went to the bathroom and sobbed. My Sweet Boy, I cry a lot in bathrooms these days.

    We went out for dinner and my eyes teared up at the sight of Emerson sitting next to Nathan.

    I have two boys left.

    I felt gratitude and longing. Sorrow and joy. Such discordance is exhausting to my soul. Right now they are equal parts. I suppose they will coexist always but somehow, over time, become imbalanced. Prayerfully, it will not always be striking like a slap in the face but become a gentle tap on the shoulder.

    Your absence at every family gathering will be there. I do not want that to change because you, sweet boy, deserve that perpetual place.

    I learned to drive in NYC because of you, Sweet Boy. I used to be terrified of it but there are so few cabs and Ubers that can take a wheelchair. Not all subway stations have elevators. The only way you could fully enjoy the city was if I drove us around. You made me so brave. I am trying now to be brave without you, but it is infinitely more difficult.

    We did not go to Times Square. Honestly, the main reason we ever went was because it was your favorite part of NYC. It always bewildered me how you, with your sensory processing issues, would sit in Times Square exhilarated soaking in all the chaos had to offer.

    This time walking around without pushing you in your chair was unnatural. There were stores and restaurants we were able to go to this time that I hadn’t been to in years. You know, Sweet Boy, how inaccessible New York can be. It was strange to be able to enjoy something because you weren’t here.

    What is a person to do with that?

    Every time I go to the city I feel compelled to go visit Washington Square Park. Some of my fondest memories of a time when life was not so cruel took place there. Your brothers, Steve, and I sat in the empty fountain in the center. I told Nathan the story of when NYU was so small the entire university’s graduation took place there. The art students all jumped in the water of the then running fountain. Though security guards were placed around, the dean of Tisch walked through quietly saying “fountain” over and over encouraging us to defy authority and jump in. It was a tradition, after all. I showed them the place that used to be a cafe where I sat at the table next to Matthew Broderick. We walked past the movie theater where I spent my first night of college watching old Bugs Bunny movies.

    We reminisced about Emerson’s audition at NYU and how he walked out to me standing there with giant cones of cookie dough in each hand to celebrate. It didn’t matter to me when I was standing in the long line to get them if he did well or not. He tried and that was worth a celebration.

    In the late afternoon we went to Emerson’s fourth floor walkup in Brooklyn. It was another new memory that would not have been possible until the after. Steve made dinner for all of us. Your brothers sat on the couch and opened Pokemon cards. Baby slept over at Em’s apartment and said it was his favorite part of the trip. I love that out of everything we did in NYC, it was the time he spent with his brother that mattered the most.

    I have exceptional young men.

    Three of them.

    It made my heart so happy they have each other still. Your sign for Emerson was an “E” on your heart. For Nathan it remained “Baby” because that is what I told you when I first brought him home.

    “Look, here is our baby.” It stuck and we did nothing to unstick it. For that, I am grateful.

    I desperately needed the reprieve from Grief. She was kind today and walked behind me allowing me to enjoy the sun, the memories, and time with your brothers and Steve. She only nudged me a couple times, until I laid in bed. Then she hopped right into bed with me and stole the covers.

  • Silence of Saturday

    Silence of Saturday

    The hurt is constant but heavier today, sweet boy. Tomorrow is Easter and I will only make one basket. This will be our first family holiday in the after.

    I am hunting for the good.

    Every morning I wake up and my first thought is, “He is gone.” My second thought is a prayer. For peace. For comfort. For direction. For the gigantic space to abate even if just a little. For His Presence and Mercy.

    Six weeks later and grief is still intense, but I can breathe a little between the attacks. The truth hasn’t settled completely in my mind, but it is almost there. I still hear you sometimes. I fight the reality I no longer have to make sure you are all right. We went to a movie yesterday and there were no arrangements needed for your care. It did not matter it was a long movie because I didn’t have to be home in time to catheterize you. It was detested and unwelcomed. But it is here. I have no choice.

    Today marks the day in our faith, sweet boy, that was silent. This is the in between. Death seemed to have won. Resurrection was still to come. We have no rituals to celebrate today – only to call it “Holy”. Was it hopeful? Frightening? Quiet? Wondering? Doubting? Wrestling?

    Grief lives most violently in the silence of Saturday. The ripping from this world is done. The victory is yet to be. It only took Jesus three days. How I wish Grief worked that quickly.

    But she is stubborn. She is relentless. She is powerful. She likes to take her time.

    So, I sit in Saturday. Six of them since you left, sweet boy. I will be stuck here in the violent silence of Saturday with a broken heart for all that was you, my whole world.

    Resurrection is coming. I hold to hope. The stone will roll away. Darkness will be swallowed by light. I see the slightest glimmer even as I accept grief will reside with me until I join you, sweet boy, on a beautiful Sunday.

  • Hunt for the Good

    Hunt for the Good

    Sweet boy, we are approaching six weeks since the loss of you. At first I counted time by days and now in weeks. I don’t know why I mark the time from the day you died – only that I do. Just as we tell a baby’s age at first by days, then weeks, then months, then years so goes the marking of death.

    I have storages of unpacking to do including medical trauma interlocked with grief. Once the unpacking begins, I suspect other traumatic losses will rear their unhealing, so I enlisted help. I started therapy. The therapist said many studies have been performed regarding grief with soldiers because they are a unique population and have endured extensive losses. One of the tactics used that seemed to help was

    “Hunt for the good.”

    At first I started thinking about hunting in terms of the sport. It requires active seeking, difficult landscape, going undetected, and waiting. This didn’t sit quite right with me especially because the object being hunted does not want to be found.

    The good which I seek wants to be known.

    Easter is in a few days, sweet boy. Thankfully, your brother, though 13, still wants to do an Easter egg hunt with your cousin. I will stuff some eggs with candy and others with money. As you know, traditionally, the golden egg has a twenty dollar bill and is extra hidden but not impossible to find. The hands that hide the eggs are hopeful they will all be found – and gently assists to be sure they are.

    I will hunt for the good, the hidden treasures, as a child with an empty basket on the morning of celebration dedicated to divine hope and promise.

    The eggs will seem like ordinary things. A warm cup of coffee… the morning sun.. your brother’s smile.. Grandma’s laugh… new leaves on my plants.. Steve’s hugs… Emerson’s phone calls… a full moon… a hot shower…

    The very skill I need to survive your death was taught to me by you through your life.

    When you were six months old you lifted your own head for two seconds. I cheered and cried. It didn’t matter it was months later than typical. What mattered was that you did.

    You were diagnosed “failure to thrive” and had a feeding tube placed when you were one. Your first birthday was celebrated in the hospital. The doctors thought we would have to always tube feed you and did for a couple years. Then, through a lot of work with speech therapy, you began to eat pureed food. Once again, I cheered and cried. You learned to eat.

    A lifetime of witnessing you, sweet boy, work incredibly hard to accomplish what others did naturally formed me into a mom able to find the good – even in delayed or absent milestones, missing pieces of chromosomes, and hospital rooms. I will find the good in living each day.

    I am still here. It cannot be for nothing.

    Living and loving you led me to take nothing for granted. Not only because of your accomplishments that were never supposed to happen to be but because that is how you lived. You laughed at the littlest things – an inflection or word. Sometimes ordinary words would make you laugh hysterically. Like feet. And focus. And not sorry. It was beautiful.

    Hunt for the good. Desperately find it. Crack it open. And with a grateful – even if broken heart – cherish the treasures.

    Ever so slowly, my basket will fill.

    The Hands that hid the eggs will help me find them. Even after the basket is full, I will continue to hunt for the good. But, sweet boy, that is how we lived wasn’t it? Not just in loss. We did it in life. The little things didn’t just matter, they were everything. That skill is now my saving grace. The very thing you taught me through your life will save me from your death.

    I will give you treasures hidden in the darkness – secret riches. I will do this so you may know that I am the Lord. (Isaiah 45:3)