I am not at all steady today, sweet boy. The tears won't stop. My eyes are swollen. The world does not spin as it should. The fog descended again and everything seems slow motion. It has been twenty-two days. Today I am simply hoping to hope. Years ago I wrote a blog about Kintsugi, the... Continue Reading →
We went to Tyson's Corner today. Nathan asked if we could and he never asks for anything. I put the bravest face on I could and off we went. It was strange just going to the car. There was no backpack to stuff with catheters, aprons, pullups, wipes, g-tube kits, and pureed food. No extra... Continue Reading →
I am struggling today with the "what ifs". I read that the brain actually prefers guilt over helplessness. Mine is desperately trying to make sense of senselessness. Grief, it seems, can make us become our own harshest judge. I remind myself, moment to moment sometimes, that the medical professionals didn't even know how sick you... Continue Reading →
Two weeks ago this day your heart beat for the last time. It feels like two decades at times and two minutes at others. Time is cruel. I went to Home Depot today. You hated Home Depot. It was your least favorite store but we also had fun there, especially during Christmas. We would push... Continue Reading →
I ventured out for the first time in almost two weeks since my precious son passed away. We drove to a Walmart 30 minutes from our home, one he did not go to on our daily outings. I thought it might be easier. I thought wrong. Walmart is Walmart. We walked in. Deep breath. Two... Continue Reading →
The silence stings. Absence is all I hear…Your laughter no longer reverberates through the house.For now, it only whispers in my heart and I long with all my beingto hear more, louder, explosive you.The chaos is gone. Yet you remain The beautiful fractals of excitement, impatience, joy, and love are flat and cold.Normal is abnormal... Continue Reading →
I confess. I lost myself for a while. When someone would ask how I was I would begin speaking about how the boys were or my mom or my husband. I have one friend who would always stop me and ask, "but how are YOU?" I never really knew how to answer that question. I... Continue Reading →
Every morning I dress my 20 year old son. Wesley was born with significant special needs and is incapable of assisting with dressing himself. My morning starts with coaxing a sometimes cooperative but more often than not uncooperative man to the bed to change. I clean the wound for his g-tube and apply dressing. Next,... Continue Reading →
The first 12 years of my life were spent in the United States Air Force. My father had joined during the Vietnam war and remained in the service until he retired lieutenant colonel many years later. Growing up on an Air Force Base is a very unique experience and not for the faint of heart.... Continue Reading →
When I was a child my father had a dark room in our basement. If I close my eyes I can almost smell the chemicals. I would spend time with him there as he would dip a seemingly blank sheet of paper into trays of chemicals. As a child I was not interested in the... Continue Reading →
Patience to Endure 