Twenty-four years seems too short yet a miracle. You were medically fragile but the strongest person I knew. Your death was shocking but anticipated. You are my son but you are not here. I have been looking for answers that may never come. My heart knows healing and alleviation will not be found in the... Continue Reading →
Grandma has been cleaning out my closet to make space for your things, sweet boy. I can't bring myself to let anything of yours go other than your bed. I will sort through your toys and clothes once I am stronger. She found books in a dusty box. Titles like, "Even This", "Just Enough Light... Continue Reading →
One month ago today, sweet boy, we took you to the Emergency Department. They thought you were stable. They thought you would go to a general medicine floor. But that was when the first domino was only teetering and had not yet fallen. For the last month I have cried out to God day and... Continue Reading →
I am not at all steady today, sweet boy. The tears won't stop. My eyes are swollen. The world does not spin as it should. The fog descended again and everything seems slow motion. It has been twenty-two days. Today I am simply hoping to hope. Years ago I wrote a blog about Kintsugi, the... Continue Reading →
We went to Tyson's Corner today. Nathan asked if we could and he never asks for anything. I put the bravest face on I could and off we went. It was strange just going to the car. There was no backpack to stuff with catheters, aprons, pullups, wipes, g-tube kits, and pureed food. No extra... Continue Reading →
After Nathan goes to school I sit in the living room and wait for the morning sun. She begins quietly, warmly, subtly. Over a span of just minutes she presents herself, glorious and strong. The dusty windows do not deter her. She comes anyway. Last night Leane, Morgan, Chris, Audrey, and Baby Chloe came for... Continue Reading →
It is a beautiful day today, sweet boy. The kind of day you would sit on the swing and with furious determination scroll through your Ipad. I managed to catch up on watering plants and even repotted a couple. Still, most of the day was spent on the couch unpacking the medical trauma from two... Continue Reading →
Steve and I went to church today with the "baby." When I brought Nathan home from the hospital thirteen years ago I taught you the sign for "baby". It didn't occur to me then that someday you would still be calling the six-foot one teen age brother "baby". You loved it when he came with... Continue Reading →
Patience to Endure 