Tag: inspiration

  • Left

    Left

    I confess. I lost myself for a while. When someone would ask how I was I would begin speaking about how the boys were or my mom or my husband. I have one friend who would always stop me and ask, “but how are YOU?” I never really knew how to answer that question. I didn’t know how I was. I didn’t know who I was. I lost her somewhere along the way during the last three years.

    I have been a caretaker in some way for the last 26 years. It intensified 23 years ago when our son with significant special needs was born. It then intensified dramatically 3 years ago when he became very ill and spent a month in the intensive care unit. During that month we were told three times he was not going to make it. Thankfully, he and God had a different plan but we emerged with new medical needs. There are now medications throughout the day, intermittent catheterizations, diaper and dressing changes, doctor’s appointments and documentation. Our son is cognitively 3 in the body of a 23-year-old man with all the perils and potential hazards to be considered when caring for a toddler.

    Being the caretaker of another human is a divine calling. It is a gift and one for which I fervently prayed, begging God to just let our son stay and to allow me to continue to care for him. Yet the awesome responsibility of another life and their literal ability to stay alive is brutal. It is exhausting. It demands all of you and then a little more. Getting lost is easy.

    It is a different life and very difficult to offer glimpses to those who do not live in my world. So much of my time is devoted to tending care that it is far too easy to forget who I am outside of those duties. Without intentionally taking space for myself, I can get lost easily and without even realizing it because all I can do is what is necessary to get through each day. To me, a luxury is a shower or to eat an entire meal without getting up. Self-care is not going to the spa or a winery or attending a concert. In my life self-care is basic hygiene and some days I do not even accomplish that.

    It is quite the conundrum. Some days it is an impossibility. I so intensely care for another there are days it is simply impossible to care for myself or others I am blessed to love. Relationships can be difficult to attend to in the way they demand or deserve. We sacrifice people and plans we don’t want to forego yet my purpose demands it.

    In my experience, most of the time, life will gut you to get you to remember who you are. It will strip you down. It will seemingly mercilessly distill you to the basic element of who you are.

    When I was in college, I had an organic chemistry professor who could not get across to the class the importance of distillation before we began the experiments. It was a night class and most of us had full time jobs. To us it took too much time to do the extra steps. We were already tired from the day. No one wanted to be there a moment longer. It didn’t matter much for the integrity of the course we needed to make sure what we were using was the purest substance and how it was intended to be.

    Distillation is an imperative step used “primarily to separate substances from the mixture to allow for purification or the concentration of a desired component.” It will rid the solution of any potential compounds not necessary for the goal to be achieved. One night our professor intentionally contaminated our solutions so if we did not go through the distillation process, we would conclude the incorrect answer. Every single person in my class that night got the lab wrong. To each of us he simply said, “It must have been contaminated.”

    The distillation process takes heat. It takes time to get to the boiling point and to get rid of what does not belong. It takes patience and waiting during the process. But once all of those unnecessary contaminants are gone, the element we are testing is reliable. It is true. It is pure.

    I sit on my couch on a sweltering hot day. The temperature outside is frigid compared to what it feels like in my soul. This was not a voluntary distillation. Life does what life does. Boiling points have been reached. That which does not matter melts away and I am left with inspecting the elements that are left in their purest form.

    Raw. Pure. Painful. Beautiful. Unimaginable. Overwhelming. Necessary.

    I remind myself the distillation process does not obliterate. It gets rid of the residue. It tests other components. It allows you to separate and discard. It voids contaminants. It is re-birth.

    The distillation process rids me of beliefs about who I am which I have picked up along the way. Some of them were true yet I want, I choose, to leave behind in the residue. Some were never supposed to be part of the compound. They were not mine to hold and could only harm me.

    I look in my flask. I see what is left. It is all those things no one can take from me and I only lose when I give them up.

    Love. Integrity. Faith. Hope. Purpose. Peace. Truth. Determination. Perseverance. Gratitude.

    The process also rids me of names thrust upon me by others and by myself. They are contaminating lies. And so, I cling desperately not to who others say I am or even who I say I am. In my flask all that is there now is who He says I am.

    Beloved. Precious. Worthy. Loved. Redeemed. Accepted. Chosen. Child. Heir. Known. Masterpiece. Temple. Justified. Sanctified. Conqueror. Light. Friend. Creation. Created for good works. Family. Strong. Overcomer. Blessed. Blameless. Sealed. Complete. Hidden. Raised. Free. Victorious.

    I stand up off the couch. I take a deep breath. Gratitude fills my being. Distillation is a gift. It is in the letting go we are left with all we ever actually needed. My list and your list are the same. Our truths are endowed by our Creator as we were stitched in our mothers’ wombs and they are irrevocable. No amount of loss, heart ache, trauma, worry, anxiety, or difficulty changes what you and what I will find at the end of our distillation process.

    Because at the end of our prayers regardless of whether God has said “yes” or “no” is new life, a new opportunity to begin again building upon the blocks of what is mine and who He says I am. That is a pretty good place to start, I’d say. And so I do. One step ever onward.

  • Perseverance

    Perseverance

    Perseverance: continued effort to do or achieve something despite difficulties, failure, or opposition.

    Today is a date of remembrance for me and my children. It is a date that has lost power over the last 13 years but will remain, for the rest of our lives, as a date of life altering, horrific, and traumatic importance.

    Thirteen years ago today my first husband committed suicide. Now, this day, I remember and am in awe of what I endured and the perseverance it took to not let the darkness swallow me.

    Sometimes perseverance isn’t glamorous. It doesn’t happen with some inspirational song playing in the back, sweat pouring from your brow as you conquer the challenge before you. Sometimes, it is just sitting up in bed. It is taking a shower or eating something. It is just staying in one place and not letting the gravity of the situation pull you one inch backward. Sometimes, it is that quiet cry to God to help you sustain just one more minute. Those one more minutes add up to days, then weeks, then months, then years.

    And you look at the path from which you came and are so very grateful.

    After my first husband died several people said, “You won’t even remember this first year,” as if it was some sort of consolation I had been so traumatized my brain would block it out. So I wrote. I wrote everything down because I wanted to remember. I wanted to never forget all the gigantic and miniscule ways God was there. In every moment capturing every tear, He was there.

    I share now some of my journal from that day. Incredible blessings, unexpected, have since come in the form of an old friend who became my husband. It also gut punched me with almost losing Wesley, our sweet son with special needs, during a month long stay in the ICU with all the drama of a television show. My father passed away and with that my protector and life will never be the same.

    One of my favorite quotes is from Robert Frost:

    In Three Words, I Can Sum Up Everything I’ve Learned About Life. It Goes On.

    It does. And I go joyfully, gratefully with it. Yet on February 10, I remember…

    Extraordinary Sacrifice

    “God whispers in our pleasure, speaks in our conscience, but shouts in our pains. It is His megaphone to rouse a deaf world.”  C.S. Lewis

    I walked back downstairs into the basement and turned the corner into the theater room.  My eyes were immediately drawn to the double door and I noticed it was unlocked.  As if punched in the gut, I could hardly breathe and something in me just knew.  To this day I still do not know why but I ran straight outside.  With no socks or shoes, without a coat, I ran into the cold, heartless February air leaving the door behind me wide open.  I ran as I have never run before.  I did not know where I was going, only that I was going to find him.  My determined feet carried me to the barren spot down the hill in the woods behind our home. There he was, my husband and father of my children, dead.

    I screamed an expression I did not know my voice could make.  It was a desperate cry that came from a place inside me I did not know existed nor had I ever fathomed to realize.  Nothing but that exact combination of shock and desperation could replicate the sound my soul was making.  It was not a groan nor was it a scream.  It was a unique sound all together and I couldn’t believe it was coming from me.

    His eyes stared blankly at the cloud filled, sad sky.  His color had already changed to a hue of yellow I had never seen on a human body with legs tucked underneath as if he had fallen backward.

    “What happened?!” I screamed and kept screaming as if someone was going to answer. “Oh, God, what happened?” Then I saw it.  I saw the small hole through his chest, the same place I had laid my head countless times over the better part of 17 years.

    It was not like the movies.  There was no blood pouring out or even a puddle beneath him.  I could hardly tell where the bullet had penetrated. There was only a pencil sized hole in his favorite blue sweatshirt.   Although no more than ten minutes had passed from the time I left him to get dressed to the time I found him in the woods, something in me just knew it was too late.

    I fumbled to get my phone out of my pocket.  Sliding the screen to unlock it was nearly impossible with hands shaking violently.  Finally, I concentrated as much as I could to dial three numbers in the correct order.  9. 1. 1.  

    “911, what is your emergency?” the male voice began

    “My husband shot himself.  He isn’t breathing. Please send an ambulance,” I screamed hoping beyond hope he could be resurrected. 

    “I need you to calm down so I can understand you,” the voice on the other end urged.

    “Please. My husband. My husband is dead.  Hurry. Send someone. Please,” I collapsed next to his lifeless body.  “Is the ambulance coming?”

    “It is.  Where are you now?” he asked calmly.

    “Beside my husband, in the woods,” I began hyperventilating.

    “Ma’am, I need you to go to the driveway so the authorities will see you when they pull up,”

    I found my way to the drive way.

    “Oh God, what will I tell my children?” I cried.

    “I am here, ma’am.  Let me know when the authorities arrive,” the dispatcher whispered.

    Moments later the first police officer arrived and the 911 dispatcher hung up.  A very tall man with broad shoulders and dark hair walked calmly up to me. 

    “My husband. He is in the woods over there,” I said almost hyperventilating.

    “Please stay here and wait for the ambulance,” he said with a serious tone as he walked with long and hurried steps to the back yard.

    My heart and mind ever so slowly began traversing into a surreal place.  As if in slow motion, I saw my parents tan van turn the corner and proceed cautiously to the bottom of the drive way.  They had come from Northern Virginia a couple of days before for a visit.  Just three hours earlier morning my mother had made us a wonderful breakfast and we all sat at the table devouring it.

    They had only gone to the bookstore but returned to caution tape and police cars. I saw my mother running full blast toward me as I cried, “Gary shot himself. He is dead. I can’t believe he left me…”

     My mother fell to ground screaming “No, Gary, it wasn’t worth it.”  My father’s face turned to rage as he punched the air and simply yelled, “NO!”  as if he could command it to not be so.

    “I can’t believe he left me,” I repeated. “I can’t believe he left me,” over and over and over for years to come.

    As my mother cried and screamed in the grass I felt as if my soul was beginning to disconnect from my body. I touched her back and just stared at the world around me. I saw houses and tress.  I saw the grey, overcast February sky as if God Himself chastised the sun and sent it away but nothing was registering.  The wind was blowing, it was cold, my mother was screaming but it must all be happening to someone else.  This was not, this could not be happening to me.

    My father realized my demeanor was changing. My speech was becoming slurred. Like the nightmares I had as a child, I wanted to talk but the words were coming out unformed. He recognized the signs of shock and summoned the police officer. Since the ambulance arrived but no resuscitation effort was made they carried me in to be assessed by the EMTs.

    “Stay with me, focus on me,” my father repeated. At times he had to yell to get my attention.

    When I looked at him things were clearer and the full force of my grief was held at bay. As soon as my eyes diverted from my father everything became chaotic and uncertain. The world was literally spinning. Gravity was failing. I was disconnecting from my own realm. I was at the cusp of oblivion. There was an intense, real fear knowing that if I let go and floated into that unknown place I might not know how to get back. There was a knowledge that I could somehow control it. For a split second, though, I wondered if it would be more inviting than the reality I now faced. An enormous vacuum was sucking my soul away yet even in my altered mind I knew I had to try to stay. I was scared. I did not want to go there yet did not want to be in reality equally as strongly. What was transpiring was much too much for me to handle. The reality that my world was being ripped apart was both figurative and literal as I lay in the ambulance looking at my father’s loving, pleading eyes.

    “Stay here, the boys need you to stay here,” my father begged.

    Reminding me that my boys needed me changed everything. It was the exact switch that needed to be flipped. Indeed, from the moment of conception I loved them more than my own self. When I was pregnant with them I would care for myself. I would eat right and drink plenty of water. I quit smoking. I could not or would not do any of those things for just me, but when my body became a vessel to them I did anything to ensure they would safely arrive into the world. I needed to do anything to ensure they would stay safe in a rapidly changing world.

    I fought back with all my might against the lure of being in the other world where, I believed, I could be numb but where my children would not be able to find me. They did not even yet know they had lost a parent, I was determined they would not lose both.

    I lay on a stretcher wrapped in a blanket. I do not know how long I had been outside barefoot and no coat. I was shaking from cold and fear and death and uncertainty. I was shaking to the very soul of me.

    I could physically feel and spiritually sense the presence of all that was to come: as if grief, anger, despair, anxiety, loneliness, and regret, all at levels I had never encountered, were floating above but had not yet pounced. They were swirling, circling, waiting to attack viciously. Indeed, they were eager to devour me. I felt strangely peaceful that they would wait. Instead, I looked at the young woman who was part of the response team.

    “Do you read the Bible?” I asked.

    “Yes, I am a woman of faith,” she answered.

    I whispered with my eyes closed, “How is God possibly going to bring good out of this? My husband is dead. The father of my children is dead.” When I finished my question I looked up at her as if saying “my husband is dead” was safer if said with my eyes closed.

    Tears began to roll down her eyes. “It is all right to be angry with God and tell Him you are angry,” she responded.

    “I am not angry with Him,” I said, “I cannot face this without Him.”

    My spirit made a decision when my mind could not. My brain and heart had suffered an injury of cataclysmic proportion yet my spirit knew I would not survive except by clinging to my Father’s robe. I was the woman in the crowd. I was not pushing through people but I would push through anger, fear, doubt, loneliness, excruciating pain, to reach the hem of my Savior. I would stop at nothing to touch Him. I knew my faith would heal me.

    As I sit here 13 years later sharing this incredibly raw and vulnerable moment, I know it did and for that, I am exceedingly grateful.

  • Loving Like He Was…

    Loving Like He Was…

    We’ve heard the adage we should live like we are dying. Life is short. Take the Trip. Buy the Shoes. Eat the cake. Live as if every day is our last.

    But what if we take the focus from ourselves and live and love as if others are dying? How much slower would we be to anger? How easily would we forgive? How much more mercy and grace would we be capable of granting? Would we hold back on “I love you”? Would we cling to that grudge as if it were more important than a person? How much less irritated would we get? Would we leave anything unsaid or unresolved?

    My father died on July 10 at 7:28 pm. The odds of dying during a heart catheterization are 0.05% We weren’t expecting that to be the way he would leave us.

    He was eighty-one and growing frailer though his mind was still sharp. Still, something in me knew we might be approaching our season of lasts.

    I told my husband on Father’s Day I wanted to make a big deal for my dad. I spoke the words, “What if this is my last Father’s day with him?” So we had the finest meat and all sat down at the dinner table together to celebrate. I said the blessing before the meal and, choked up with tears of gratitude, thanked God for giving my dad to me. I thanked Him for the blessing of having such an amazing dad. I asked for strength and health for him in the years to come. My dad got to hear my intimate prayer of gratitude for him.

    I took my dad to doctor’s appointments and grocery shopping. I slowed down and paused when he had something to say whether I found it interesting or not. Merely the fact that he wanted to share was enough to pay attention. I hugged him more often. I always told my dad I love him with great frequency, yet it increased. I approached each day as it was, a gift. And in the recesses of my heart I knew the days would be no more. I just didn’t expect it so soon. When a beloved parent dies it always feel so soon.

    I cherished the time we had not because I was living like I was dying; I was loving like he was.

  • Even for a 20 year old

    Even for a 20 year old

    Every morning I dress my 20 year old son. Wesley was born with significant special needs and is incapable of assisting with dressing himself. My morning starts with coaxing a sometimes cooperative but more often than not uncooperative man to the bed to change. I clean the wound for his g-tube and apply dressing. Next, I change his diaper and place an elastic band over the feeding tube to protect it from coming out either accidentally or being pulled out purposely by Wesley. I dress him in a spandex undershirt to further protect the g-tube. Finally, his second shirt is on and I pull his arms through the sleeves. He is strapped into his wheelchair, ready for the bus. By the time we finish Wesley is usually agitated and yelling. Every. Single. Morning.

    Most mornings it is just part of my routine. Some mornings, though, I must remind myself what a privilege it is. I bring to the forefront of my mind the multiple times I held him in hospital Pediatric Intensive Care Units unsure if he would live another moment.

    I recollect the first time I found myself in a hospital chapel.

    I grew up close to God and went to Catholic School. I clearly remember watching all the Easter specials on TV. I would grab some ice cream and watch with wonder the story of Jesus. I wished I lived then, that I could have followed Him. He was my hero.

    But then life happened. Or, rather, I chose different paths each leading me further and further away from that childhood hero. After I married my first husband we moved to a town in South Dakota. His job afforded us a level of prestige that was appealing. We ran full fledged into this world where we had dinner invitations with the Senators and the best seats at the symphony. As my love of this new world increased, my love for God all but disappeared.

    Then Wesley had his first major surgery in Minneapolis, four hours from our home. Everything went well until that evening. He spiked a little fever but they discharged him thinking it was dehydration and nothing to worry about. By the time we arrived home his temperature was over 105. Something was terribly wrong.

    A trip to the Emergency Room ended in the Pediatric Intensive Care Unit. He was hooked up to every device imaginable. His little body had no more room for all the probes and wires. Blood was drawn and almost every test came back abnormal. His liver functions were through the roof. Every specialist and subspecialist was called. Each one shrugged his shoulders and deferred to the next specialist until the final physician stopped at the door on his way out.

    “If you pray, I suggest you do,” he said as he left.

    Oh my heart. I had prayed only once in years. Not a single hello or thank you, just a single “can you do this for me?” And I was back with my hands held out asking for another favor. Would He even know my name?

    The elevator door shut slowly and I grew certain God would not know me or worse, would be angry because I only came to Him when I needed something. What once was one of the most important relationships in my life had, over time, eroded to my last resort.

    I sat in the little Chapel in silence for a few minutes. Dinner with the Senator didn’t matter. Where we sat in the symphony hall could not help me. The massive money my husband made would not save my son. Only God. And I had ignored Him for nearly a decade.

    Are you there, God? It’s me. Jocelynn. It’s been so long and I am so sorry for being away. I need you now. Please, God, let me keep my son. The doctors can’t heal him. They don’t even know what is wrong. But I know You can. Please, God. Please let me keep my son.

    I did not try to bargain. I had nothing to offer. I sobbed in desperation and embarrassment. How could I have been gone so long just to approach Him now to ask Him for something, the most important something I would ask? I hoped He would not hold my absence against me. My soul shook violently with fear, regret, and uncertainty.

    I walked quickly back up to Wesley’s room and crawled into his little crib and fell asleep.

    Nurses came and left through the night checking his vitals and taking blood. His morning nurse came in and woke me with a laugh.

    “I’ve never seen that before,” she said about me sleeping in his tiny crib.

    A few minutes later a team of doctors came in holding Wesley’s clipboard.

    “Good morning,” the lead doctor said. “His blood work taken last night is in. We have no explanation, but his liver functions have returned to a normal level.”

    “Is he going to be ok?” I asked crying.

    “We think so,” he replied.

    Over the years there would be more visits to Pediatric Intensive Care Units. There would be at least three times I would beg God to let me keep my son. All three times He answered yes. However I approached Him as a friend and not a stranger. At times my prayer to keep my son was followed by, “But if I can’t, please give me what I will need to endure.” And I knew He would.

    The prodigal daughter had returned.

    Changing my 20 year old’s diaper is not a burden. There is necessarily, a paradigm shift that occurs when the only thing one wants is for their child to live. Everything else fades into triviality. Changing his g-tube dressing and diapers every morning is exactly what I prayed for all those years ago in that lonely hospital chapel. I think of all the people I met in those rooms and friends along the way who prayed the same prayer and God said, “no.” I have heard muffled cries to soul wrenching screams from hospital rooms that no actor in any movie can replicate. It comes from a place deep within most of us never have to access. I wish I had the wisdom to know why some people’s children die. It seems horribly cruel. In some way, however slight, I try to honor them by realizing what an absolute privilege it is to change diapers. Even for a 20 year old.

  • 8

    8

    Nathan, my eight year old, will tell me I am the best mommy in the world when I do something he hopes I will do. If I give him an extra 5 minutes at bedtime I am the best mommy in the world. If I give him Robux for no reason I am the best mommy in the world. The irony is I am not the best mommy in the world when I ask him to do something he doesn’t want to do. I have never said “time to clean your room” and heard him reply “you’re the best mommy in the world.” 

    There is no doubt he loves me. However, I am only the best mommy in the world when it suits him. Though I am far from perfect I try earnestly to make every decision with his best interest in mind whether he understands it or not.

    When I tell him to clean his room his child’s mind doesn’t see the patterns I am trying to help him establish. He doesn’t understand the task is only partially about a clean room. It is about responsibility, discipline, and doing the right thing even when he doesn’t feel like it. 

    How often do we treat God the way my eight year old treats me? We say God is good when something goes our way. When we get the job we want or a loved one is no longer sick or a marriage has been saved God is good. But what about when we don’t get the job or our loved one dies or our marriage is lost? Is God still good? 

    I need to get out of the mindset that God is good when He does what I want. God is always good. 

    My child was born with special needs. God is good. 

    The doctors tell me he may not survive the brain injury and the next 24 hours are crucial. God is good. 

    I found my first husband dead from a self inflicted gunshot wound. God is good.

    There is cacophony in my mind to read those sentences combined but not in my soul. I can and should yet say God is good in every circumstance, every trial, every victory, every defeat. 

    Like my 8 year old son I don’t always understand why. I wish hardships and challenges could just not be mine and the One who yields the power to change the course of direction does not. Whether it is His divine plan or the result of free will there are some things, difficult and seemingly impossible things, we must endure. God doesn’t author hardship but He will use it. 

    God is good.

    I lost my job…God is good.

    My spouse left… God is good.

    I can’t pay the rent…God is good.

    The second half of those sentences bring light and hope to the first part. It helps negate the natural propensity for my perspective to be that of an eight year old. God isn’t just the best Father when things go my way or when life is easy. I would argue it is precisely during the hard seasons He shows us how truly and powerfully He is the best Father if we would just position our thoughts and actions to believe it and our faith to see it.

  • In the clearing…

    In the clearing…

    Here it is. A decade has passed since I found Gary in the woods dead from a single gun shot. Time is a strange thing post trauma and I’ve covered a lot of ground since then. The day is now, mostly, an historical remembrance more than an emotional one. For my children though it is a nightmare of a day to get through and that breaks my heart more than anything.

    Gary didn’t have a long history of depression. There were no “classic” signs he was going to do what he did. What he did have was a long history of battling addiction. 

    Ten years before his death he was prescribed percocet for severe tendonitis. As a maternal fetal medicine specialist taking time off to nurse his injury just wasn’t possible. What began as an innocent prescription was, unknowingly at the time, my first step into hell that included driving him 18 hours through the night to rehab where he stayed for three months and ended with me finding him in the woods.

    Upon discharge Gary had access to the best group and private therapies. He was followed for five years by the Health Practitioners Intervention Program. What he didn’t have was the freedom to battle his disease in the light.

    Shame, judgement, and stigma made that simply impossible. Imagine a boxer equipped with the most advanced protective gear and a heart to win but being put in a ring in absolute darkness. Yet the foe he battles only grows and thrives in the dark. His strength is fed by what the fighter can not share and others can not see.

    And so he lost. Many of the people in his group therapy all those years ago lost. My children lost. God lost the opportunity to redeem his situation. And He would have. He always does.

    The “addict” is someone’s father, son, physician, teacher, husband. They aren’t as portrayed on television. They are from all classes and many put on a suite and tie or scrubs or a judges robe every day. They love their families. They want to be in recovery. The addict might even be you.

    On this day, the tenth anniversary of his death, my prayer is a post like this might bring a little light to the other boxers still in the ring swinging madly in the dark. I hope they hear my voice cheering them on and not the voices of discouragement and judgement. I hope a seed is planted for the person reading this who is fortunate enough to not know addiction the way I do and the seed will grow compassion. Though they may not know it, chances are they love a person with addiction. My prayer is the person fighting who is reading this would have the courage to bear light themselves and help change the notion addiction only plagues degenerates. They would have the courage to say “my name is…and I am an addict.”

    They are busy fighting addiction, a formidable and relentless enemy. May we who are not wearing the gloves fight shame, stigma, and judgement for them. May we hold the light and shout words of love and encouragement while they fight for their lives.  I am convinced their foe will shrivel in the light if we just have the courage to shine it steadily, brightly, and boldly for them.  

    May we help change the perception that they are junkies squatting in an abandoned house. They are boxers in the ring. They are fighting. And with our help maybe, just maybe they can win 

    (more…)
  • My Mother’s Robe

    My Mother’s Robe

    When I was a child I could not, for the life of me, fall asleep on my own. I felt particularly fearful at night. It was the time when the distractions were gone and my mind had room to roam to all sorts of horrific scenarios like monsters under the bed or alien invasions or a world wide shortage of ice cream. 

    The only way I could get to sleep was for my mother to lie down next to me each and every night. Only then would I feel safe believing all the terrible things I imagined would not, could not happen. Her presence beside me assured my little heart everything was going to be just fine and I could finally rest.

    In the mid seventies she had a quintessential robe for the time, complete with flared arms. In order to ensure she not try to sneak away until I was fast asleep I would wrap my tiny hand in the flare leaving her no escape except a limp, sleeping hand. I did whatever I could within my little six year old power to make sure she was closest when I felt the most unsafe. 

    Nine years ago my first husband committed suicide. I found myself, once again, terrified of the night. Fear when not combated thrives in those moments of quiet. My mind roamed to all sorts of horrible scenerios like not being able to pay the mortgage, the impact this would have on my children, and the thought that perhaps I would never feel anything other than excruciating pain. It was always in those quiet moments of closed eyes when images of finding him replayed in repeat mode.

    Then I remembered my mother’s robe. Every night for months I fell asleep praying. I needed to know my Father was near and I did everything I could to ensure He not leave until I knew I was safe. I didn’t suppose God minded for He is a good Father. He knows my heart and would do anything to let me know I am not alone. 

    Then again last night it came… that moment when the hectic day was done and my thoughts had time to go to unsafe places. The world is terrifying right now. Coronavirus has disrupted our lives on a scale unseen during my life time. My children are all being home schooled including my son with autism. Our movement is extremely limited and even when we venture to the grocery store it is filled with diligence and anxiety that exhausts me. 

    The monster under the bed is invisible. It lingers in the air and attaches to door knobs and shopping carts. The information we are being provided changes daily as does the death count. It doesn’t discriminate and is vicious.

    The thought creeps in of my son with special needs catching COVID-19 and having to go the hospital alone. At 18 years old he is cognitively two. Isolated in a hospital room he would not understand what they are doing to him or why I am not there. The probability of him succumbing to Coronovairus is high given his underlying health conditions. These thoughts batter my core. I double me over until I am in the fetal position of my soul. 

    How I long for my kid fears, those thoughts that kept me up at night but had no way of actually occurring. For the thoughts that keep me up now can happen and will happen if I am not vigilant. They may happen even in spite of taking every precaution like going only to the grocery store as needed, keeping adequate social distance, and washing my hands frequently. If I have learned anything in this life it is there is only so much I can do to determine the outcome of situations beyond my own free will.

    Then I remembered my mother’s robe. I tangle my little hand around the hem of my Father’s garment and prayed as I fell asleep. His presence makes the fear manageable. There is power in that hem. There displays unshakable faith in the determination to get to His robe. The fear no longer takes my breath away. My soul unclenches.

    I remember those moments in my past of complete loss and devastation. What I now bring to prominence is the absolute certainty that beside and within me was and is the presence of my Father. He doesn’t always stop heart ache from passing through His hands. This world is not His Kingdom….yet. Even so, He is there in the midst to lull me to peace each and every night. May I never outgrow that.

    And for the moment in the dark and dreadful night, that is more than enough for me.

  • I trust You…

    I trust You…

    I was rearranging my seven year old’s room for what felt like the millionth time. He has a bunk bed that has a ladder on one side and a slide on the other. While he was sitting on the top bunk I took the slide down for a few moments. As I was trying to put the slide back on, his bed shook. I heard the sweetest voice say, “I’m scared, Mom…but I trust you.”

    How different would life be if, when on shaky ground, we sweetly said “I’m scared, Father…but I trust you.”

    During the summer of 2010 Wesley, my middle son with special needs, fell down the stairs and landed on the marble floor. I heard my stepdaughter calling me and knew something tragic occurred.

    I came flying down the stairs and saw him there. He was conscious but I noticed his hands and feet, contracted. I lived in the world of special needs long enough to know it meant brain injury.

    After an ambulance ride to UVA we were taken directly back. I remember just beginning to realize exactly how serious it was because we didn’t even have to wait in the ER.

    The nurse came in and I immediately recognized her. She had children at the same school as my oldest son. I was relieved to see her and know she would be praying as she cared for us.

    They took Wesley in for a CT and I sat in a metal folding chair in the sterile hall. I saw the tech speak to our nurse and from the other room I could read his lips.

    “There is a bleed.”

    My husband was a physician and I knew the gravity of what that meant. My child was going to live or die and there was little, if anything, that could be done by medicine to make him live.

    My prayer was simple.

    Please, God, please just give me whatever it is I will need to endure whatever is coming.

    That was the prayer of a mother who thought her child might die. The prayer of a mother who might never feel her child’s arms around her neck or see him smile again The prayer of a mother who wasn’t sure how she would live without her child. I had surrendered. I knew with all certainty Wesley’s life was in the hands of God everyday but it was never so obvious as at a moment like that. I knew that a loving, faithful God can still allow children to die.

    I am scared, Father…but I trust you.

    When the diagnosis comes…
    When your spouse has an affair…
    When the bank account can’t be stretched…
    When you lose someone you loved dearly…
    When divorce is impending…
    When the indictment is handed down…
    When your child is sick…
    When the layoff comes…
    When addiction is all you can see…
    When depression is crushing you…
    When anxiety steals your peace…
    When your heart is crushed…

    No matter when or what

    I am scared, Father…but I trust you